Just a brief update on Hilary. Other than her mouth being covered in sores, her lips all swollen up (definitely not Botox) being exhausted most of the time, not getting either much sleep or food......coz of her mouth, aching bones and a lousy stomach she's doing fine!
I'm getting good at giving her a daily needle, rotating between each arm and the belly plus I had to do an Excel spreadsheet in order to manage her regimen of meds! I don't think she even feels the needle!! How do they make them anyway??
She's trying to get protein into her as she's losing weight again.......my cooking skills are definitely an advantage now and we're trying to eat the same things.
She has a few more days of the "needle" Neupagen at $550.00 per shot plus some pills for the mouth issue and that's it, so to speak, until Aug 25th. On that day she has a load of Decadron to take and get some bloodwork done then, the following day, back down to the hospital where they will try and get the Rituxan into her again. It was this drug that she had such a severe reaction to. (poor English!) After that the regular chemo and start it all again.
Luckily, right now anyway, the tennis is on at the Rogers Centre so she gets to watch that plus the PGA is on....keeps her mind of things. She's snoozing a lot during the day too.
So......one day at a time. Some days are better than others. Tis what it is!!
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